2011
Parents' Roles in Decision Making for Children With Cancer in the First Year of Cancer Treatment
Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Parents' Roles in Decision Making for Children With Cancer in the First Year of Cancer Treatment. Journal Of Clinical Oncology 2011, 29: 2085-2090. PMID: 21464400, DOI: 10.1200/jco.2010.32.0507.Peer-Reviewed Original ResearchConceptsParents' preferred roleParents of childrenChild's physicianPhysician communicationPreferred roleMost parentsDana-Farber Cancer InstituteCancer treatmentFirst yearCross-sectional surveyChildren's HospitalPhysician judgmentPhysicians' perceptionsCancer InstitutePhysiciansCancerChildrenHospitalTreatmentPassive roleYearsActual roleMore passive rolesParentsRole
2009
Development of a New Patient-Based Measure of Pediatric Ambulatory Care
Gallagher P, Ding L, Ham HP, Schor EL, Hays RD, Cleary PD. Development of a New Patient-Based Measure of Pediatric Ambulatory Care. Pediatrics 2009, 124: 1348-1354. PMID: 19822587, PMCID: PMC5443558, DOI: 10.1542/peds.2009-0495.Peer-Reviewed Original ResearchConceptsPediatric ambulatory carePreventive careAmbulatory carePediatric careCAHPS surveyAmbulatory pediatric careHospital care experiencesHealth care policyPediatric instrumentsPediatric expertsNew patientsGood internal consistencyDevelopmental monitoringHealthcare providersCare experiencesConsumer AssessmentCareHealth careCare policyCliniciansInternal consistencyFocus groupsValid assessmentCognitive interviewsGroupPeace of Mind and Sense of Purpose as Core Existential Issues Among Parents of Children With Cancer
Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Peace of Mind and Sense of Purpose as Core Existential Issues Among Parents of Children With Cancer. JAMA Pediatrics 2009, 163: 519-524. PMID: 19487607, DOI: 10.1001/archpediatrics.2009.57.Peer-Reviewed Original ResearchMeSH KeywordsAdaptation, PsychologicalAdolescentBostonChildChild, PreschoolCommunicationCross-Sectional StudiesCultureData CollectionExistentialismHospitals, PediatricHumansInfantMotivationNeoplasmsParentsPersonality InventoryProfessional-Family RelationsPrognosisPsychometricsQuality of LifeSpiritualityTrustConceptsChronic Illness Therapy-Spiritual WellParents of childrenPrognostic informationFunctional assessmentDana-Farber Cancer InstituteMultivariable logistic regression modelCross-sectional surveyDetailed prognostic informationLogistic regression modelsOncologist judgmentChildren's HospitalMAIN OUTCOMECancer InstituteCancerCancer treatmentPeace of mindOncologistsHospitalScoresChildrenFirst yearHigh peaceRegression modelsMedical informationSubscale responses
2007
Understanding of Prognosis Among Parents of Children With Cancer: Parental Optimism and the Parent-Physician Interaction
Mack JW, Cook EF, Wolfe J, Grier HE, Cleary PD, Weeks JC. Understanding of Prognosis Among Parents of Children With Cancer: Parental Optimism and the Parent-Physician Interaction. Journal Of Clinical Oncology 2007, 25: 1357-1362. PMID: 17416854, DOI: 10.1200/jco.2006.08.3170.Peer-Reviewed Original ResearchConceptsChance of cureLikelihood of cureParents of childrenFunctional outcomeDana-Farber Cancer InstituteKnowledge of prognosisUnderstanding of prognosisCross-sectional surveyChildren's HospitalMajority of parentsChild's physicianPhysicians' beliefsCancer InstitutePhysician expectationsPrognosisCancerPhysiciansCancer treatmentCureCancer therapyOutcomesPatientsParents' preferencesPlace parentsUnrealistic expectations
2006
Communication About Prognosis Between Parents and Physicians of Children With Cancer: Parent Preferences and the Impact of Prognostic Information
Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC. Communication About Prognosis Between Parents and Physicians of Children With Cancer: Parent Preferences and the Impact of Prognostic Information. Journal Of Clinical Oncology 2006, 24: 5265-5270. PMID: 17114660, DOI: 10.1200/jco.2006.06.5326.Peer-Reviewed Original ResearchConceptsPrognostic informationDana-Farber Cancer InstitutePhysicians of childrenMain outcome measuresParents' preferencesChildren's HospitalMajority of parentsParents of childrenChild's physicianOutcome measuresCancer InstitutePrognosisPhysiciansLoss of hopeCancerChildrenHospitalParents' senseParent ratingsParents' desireParentsPatients
1999
Quality of Care at a Children's Hospital: The Parents' Perspective
Homer C, Marino B, Cleary P, Alpert H, Smith B, Crowley Ganser C, Brustowicz R, Goldmann D. Quality of Care at a Children's Hospital: The Parents' Perspective. JAMA Pediatrics 1999, 153: 1123-1129. PMID: 10555712, DOI: 10.1001/archpedi.153.11.1123.Peer-Reviewed Original ResearchConceptsTertiary care pediatric hospitalHospital discharge planningProcess of carePerceptions of careQuality of careInpatient care experienceSpecific clinical experienceQuality improvement activitiesPain managementChildren's HospitalParents of childrenPediatric hospitalDischarge planningPatient dischargeInpatient carePediatric careSpecific reportsInpatient qualityClinical experienceHospitalCare experiencesCare restsCareTelephone interviewersOverall assessmentThe Impact of Having Parents Report About Both Their Own and Their Children's Experiences With Health Insurance Plans
Shaul J, Fowler F, Zaslavsky A, Homer C, Gallagher P, Cleary P. The Impact of Having Parents Report About Both Their Own and Their Children's Experiences With Health Insurance Plans. Medical Care 1999, 37: ms59-ms68. PMID: 10098560, DOI: 10.1097/00005650-199903001-00007.Peer-Reviewed Original ResearchMeSH KeywordsAdultChildChild Health ServicesConsumer BehaviorCost-Benefit AnalysisData CollectionFemaleFollow-Up StudiesHealth Benefit Plans, EmployeeHealth Care SurveysHumansMaleParentsPilot ProjectsQuality of Health CareReproducibility of ResultsSurveys and QuestionnairesTime FactorsUnited StatesUnited States Agency for Healthcare Research and QualityWashingtonConceptsHealth care experiencesLow response rateOwn careResponse rateChild health careChildren surveyHealth insurance plansStudy groupCare experiencesPattern of responseHealth plansTelephone interviewsCareHealth careLatter groupInsurance plansAdultsSurvey questionsWeak associationParent reportPositive responseSurvey administrationChildrenAssociationChild care
1994
Histories of childhood trauma in adult hypochondriacal patients
Barsky A, Wool C, Barnett M, Cleary P. Histories of childhood trauma in adult hypochondriacal patients. American Journal Of Psychiatry 1994, 151: 397-401. PMID: 8109648, DOI: 10.1176/ajp.151.3.397.Peer-Reviewed Original ResearchConceptsChildhood illnessesMedical morbidityHypochondriacal patientsNonhypochondriacal patientsSociodemographic differencesAggregate medical morbidityMedical record auditGeneral medical clinicChildhood traumaMultivariate regression analysisDegree of traumaMore childhood traumaChildhood Traumatic Events ScaleEight-item questionnaireRecord auditPhysical illnessPatientsParental attitudesTraumatic Events ScaleMedical clinicsIllnessSexual contactTraumaHealth reasonsMorbidity