Survey Results
The 2012-2013 questionnaire responses we received from patients with IBM and their caregivers from all across North America led to the full publication below:
Demographic and Clinical Features of Inclusion Body Myositis in North America
The graphs below summarize just some results from the survey.
2012-2013 Survey Results
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Demographics
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gender distribution_lc age distribution body height_lc body weight_lc r&e-1_lc r&e-2_lc education_lc annual income_lc employment-1_lc employment-2_lc marital status_lc living arrangement-1_lc living arrangement-2_lc gender distribution_lc age distribution body height_lc body weight_lc r&e-1_lc r&e-2_lc education_lc annual income_lc employment-1_lc employment-2_lc marital status_lc living arrangement-1_lc living arrangement-2_lc gender distribution_lc age distribution body height_lc body weight_lc r&e-1_lc r&e-2_lc education_lc annual income_lc employment-1_lc employment-2_lc marital status_lc living arrangement-1_lc living arrangement-2_lc
Diagnosis
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symptoms symp dia lag first diagnosis first diagnosis issued by if first incorrect, time to correct correct issued by biopsy symptoms symp dia lag first diagnosis first diagnosis issued by if first incorrect, time to correct correct issued by biopsy symptoms symp dia lag first diagnosis first diagnosis issued by if first incorrect, time to correct correct issued by biopsy
Health and Medical Treatment
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major problems within 3yr IBM health aside from IBM physician visit regularity physician seen doctor recommended med/vitamin recommended med/vitamins actively exercise exercise types hours/week of exercise major problems within 3yr IBM health aside from IBM physician visit regularity physician seen doctor recommended med/vitamin recommended med/vitamins actively exercise exercise types hours/week of exercise major problems within 3yr IBM health aside from IBM physician visit regularity physician seen doctor recommended med/vitamin recommended med/vitamins actively exercise exercise types hours/week of exercise
Age vs. functionality tasks
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Age vs. climbing stairsThe size of the data points represents the relative number of respondents in each group Age vs. dressingThe size of the data points represents the relative number of respondents in each group Age vs. fine motor tasksThe size of the data points represents the relative number of respondents in each group Age vs. handling utensilsThe size of the data points represents the relative number of respondents in each group Age vs. handwritingThe size of the data points represents the relative number of respondents in each group Age vs. hygieneThe size of the data points represents the relative number of respondents in each group Age vs. sitting to standingThe size of the data points represents the relative number of respondents in each group Age vs. swallowingThe size of the data points represents the relative number of respondents in each group Age vs. turning in bedThe size of the data points represents the relative number of respondents in each group Age vs. walkingThe size of the data points represents the relative number of respondents in each group Age vs. climbing stairsThe size of the data points represents the relative number of respondents in each group Age vs. dressingThe size of the data points represents the relative number of respondents in each group Age vs. fine motor tasksThe size of the data points represents the relative number of respondents in each group Age vs. handling utensilsThe size of the data points represents the relative number of respondents in each group Age vs. handwritingThe size of the data points represents the relative number of respondents in each group Age vs. hygieneThe size of the data points represents the relative number of respondents in each group Age vs. sitting to standingThe size of the data points represents the relative number of respondents in each group Age vs. swallowingThe size of the data points represents the relative number of respondents in each group Age vs. turning in bedThe size of the data points represents the relative number of respondents in each group Age vs. walkingThe size of the data points represents the relative number of respondents in each group Age vs. climbing stairsThe size of the data points represents the relative number of respondents in each group Age vs. dressingThe size of the data points represents the relative number of respondents in each group Age vs. fine motor tasksThe size of the data points represents the relative number of respondents in each group Age vs. handling utensilsThe size of the data points represents the relative number of respondents in each group Age vs. handwritingThe size of the data points represents the relative number of respondents in each group Age vs. hygieneThe size of the data points represents the relative number of respondents in each group Age vs. sitting to standingThe size of the data points represents the relative number of respondents in each group Age vs. swallowingThe size of the data points represents the relative number of respondents in each group Age vs. turning in bedThe size of the data points represents the relative number of respondents in each group Age vs. walkingThe size of the data points represents the relative number of respondents in each group
Functional Rating Scale
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cutting food and handling utensilsOne of ten categories of disability measured in the 2012-2013 survey swallowingOne of ten categories of disability measured in the 2012-2013 survey handwritingOne of ten categories of disability measured in the 2012-2013 survey fine motor tasksOne of ten categories of disability measured in the 2012-2013 survey turning in bed and adjustingOne of ten categories of disability measured in the 2012-2013 survey dressingOne of ten categories of disability measured in the 2012-2013 survey hygieneOne of ten categories of disability measured in the 2012-2013 survey sit to standOne of ten categories of disability measured in the 2012-2013 survey walkingOne of ten categories of disability measured in the 2012-2013 survey climbing stairsOne of ten categories of disability measured in the 2012-2013 survey living routine mode of transportation days away from home walking ability IBM interfere with workWork includes both work outside the home and housework IBM and energy IBM and depression remission cutting food and handling utensilsOne of ten categories of disability measured in the 2012-2013 survey swallowingOne of ten categories of disability measured in the 2012-2013 survey handwritingOne of ten categories of disability measured in the 2012-2013 survey fine motor tasksOne of ten categories of disability measured in the 2012-2013 survey turning in bed and adjustingOne of ten categories of disability measured in the 2012-2013 survey dressingOne of ten categories of disability measured in the 2012-2013 survey hygieneOne of ten categories of disability measured in the 2012-2013 survey sit to standOne of ten categories of disability measured in the 2012-2013 survey walkingOne of ten categories of disability measured in the 2012-2013 survey climbing stairsOne of ten categories of disability measured in the 2012-2013 survey living routine mode of transportation days away from home walking ability IBM interfere with workWork includes both work outside the home and housework IBM and energy IBM and depression remission cutting food and handling utensilsOne of ten categories of disability measured in the 2012-2013 survey swallowingOne of ten categories of disability measured in the 2012-2013 survey handwritingOne of ten categories of disability measured in the 2012-2013 survey fine motor tasksOne of ten categories of disability measured in the 2012-2013 survey turning in bed and adjustingOne of ten categories of disability measured in the 2012-2013 survey dressingOne of ten categories of disability measured in the 2012-2013 survey hygieneOne of ten categories of disability measured in the 2012-2013 survey sit to standOne of ten categories of disability measured in the 2012-2013 survey walkingOne of ten categories of disability measured in the 2012-2013 survey climbing stairsOne of ten categories of disability measured in the 2012-2013 survey living routine mode of transportation days away from home walking ability IBM interfere with workWork includes both work outside the home and housework IBM and energy IBM and depression remission