Resources

Yale neither endorses nor verifies the accuracy of any information contained in the following web sites.

Patient Associations:

• The Myositis Association (TMA)
• MDA’s web page on Inclusion-Body Myositis
• Myositis Support and Understanding

Research Institutions:

• National Institute of Neurological Disorders and Stroke’s (NINDS) Inclusion Body Myositis Information Page
• The John Hopkins Myositis Center
• Cleveland Clinic
• Program in Clinical & Translational Neuromuscular Research (CTNR)
• National Center for Advancing Translational Sciences (NCATS) Genetic and Rare Diseases (GARD) Information Center
• National Center for Biotechnology Information

Personal Sites & IBM Patient Blogs:

• Cure IBM
• Bill Tillier’s IBM web site

Other Sites:

• “Patients Like Me” web site
• American Autoimmune Related Diseases Association, Inc. (AARDA)
• Living With Myositis
• Orphanet portal for rare diseases and orphan drugs
• Patient.co.uk
• Wikipedia
• Myositis Support & Understanding
• Inclusion Body Myositis Support and Understanding Facebook Group

Online Publications:

• The Outlook
• Quest

Click here for a list of all ongoing trials.