2024
Emotion regulation in people living with dementia and their spouses: the role of neuropsychiatric symptoms
Lou Y, Vu T, Piechota A, Monin J. Emotion regulation in people living with dementia and their spouses: the role of neuropsychiatric symptoms. Aging & Mental Health 2024, ahead-of-print: 1-8. PMID: 38940472, DOI: 10.1080/13607863.2024.2367038.Peer-Reviewed Original ResearchPwD neuropsychiatric symptomsCare partnersNeuropsychiatric symptomsSeverity of neuropsychiatric symptomsEarly stages of dementiaEmotion regulationSelf-reported difficultyStages of dementiaMultivariate linear regression modelProxy-reportSevere neuropsychiatric symptomsNeuropsychiatric subsyndromesHealth factorsSelf-reports of emotion regulationLinear regression modelsPWDSelf-reportEmotion regulation capabilitiesEmotion regulation strategiesGoal-directed behaviorDementiaRegression modelsDomains of difficultyInterpersonal effectsEmotional awareness“WOOP is my safe haven”: A qualitative feasibility and acceptability study of the Wish Outcome Obstacle Plan (WOOP) intervention for spouses of people living with early‐stage dementia
Mroz E, Schwartz A, Valeika S, Oettingen G, Marottoli R, David D, Hagaman A, Fedus D, Monin J. “WOOP is my safe haven”: A qualitative feasibility and acceptability study of the Wish Outcome Obstacle Plan (WOOP) intervention for spouses of people living with early‐stage dementia. International Journal Of Geriatric Psychiatry 2024, 39: e6092. PMID: 38687142, PMCID: PMC11448666, DOI: 10.1002/gps.6092.Peer-Reviewed Original ResearchConceptsSpouses of peopleLongitudinal semi-structured interviewsEarly-stage dementiaCodebook thematic analysisSemi-structured interviewsCare partnersIntervention deliveryBaseline strengthThematic analysisMeta-themesQualitative studyBehavioral interventionsAreas of improvementDementiaQualitative feasibilityMental exerciseInterventionSpousesWell-beingEmotional stressorsIntervention mechanismsParticipantsAcceptability studyWishesPeople
2023
Development of the COMET tool: Caregiver‐reported Outcome Measure for Emergency care Transitions
Gettel C, Galske J, Uzamere I, Serina P, Hernandez‐Bigos K, Mane S, Chen K, Ottilie‐Kovelman S, Sandoval J, Venkatesh A, Cohen A, Monin J, Fried T, Hwang U. Development of the COMET tool: Caregiver‐reported Outcome Measure for Emergency care Transitions. Alzheimer's & Dementia 2023, 19 DOI: 10.1002/alz.074213.Peer-Reviewed Original ResearchCare transitionsOutcome measuresCare partnersED discharge processPhase 3Results Phase 1Phase 2Health care systemPhase 1Candidate itemsAcute illnessED encountersEmergency departmentCare considerationsPhase 4Outcome assessmentConclusion DevelopmentScreening toolCare systemResearch team membersContent validityPoor communicationEDMultidisciplinary stakeholdersDelphi approachPREPARING “EXPERIENCED” CAREGIVERS FOR FUTURE CARE: PERSPECTIVES FROM FORMER CAREGIVERS OF PARENTS WITH DEMENTIA
Mroz E, Piechota A, Ali T, Matta-Singh T, Abboud A, Sharma S, Fried T, Monin J. PREPARING “EXPERIENCED” CAREGIVERS FOR FUTURE CARE: PERSPECTIVES FROM FORMER CAREGIVERS OF PARENTS WITH DEMENTIA. Innovation In Aging 2023, 7: 414-415. PMCID: PMC10735791, DOI: 10.1093/geroni/igad104.1370.Peer-Reviewed Original ResearchFormer caregiversCaregiving roleNegative psychological consequencesPast experienceConsensual qualitative researchAdult child caregiversCare partnersPsychological consequencesDiminished senseDiminished confidencePositive senseNegative consequencesPersonal narrativesCaregiversParentsQualitative studyCumulative advantageConfidenceDementiaExperienceQualitative researchSkillsCare rolesTheory techniquesAdulthoodPERSONS LIVING WITH DEMENTIA AND MULTIPLE CHRONIC CONDITIONS IDENTIFYING HEALTH PRIORITIES WITH CARE PARTNERS
Vu T, Mroz E, Hernandez-Bigos K, Chow D, Samper-Ternent R, Johnson K, Tinetti M, Monin J. PERSONS LIVING WITH DEMENTIA AND MULTIPLE CHRONIC CONDITIONS IDENTIFYING HEALTH PRIORITIES WITH CARE PARTNERS. Innovation In Aging 2023, 7: 416-416. PMCID: PMC10736172, DOI: 10.1093/geroni/igad104.1374.Peer-Reviewed Original ResearchMultiple chronic conditionsHealth care prioritiesCare partnersChronic conditionsHealth priorityCare prioritiesPilot studyYears of ageEvidence-based toolsPatient prioritiesOlder personsPLWDCare decisionsHealth goalsCare recipientsHealthcare goalsOlder adultsDementiaOpen-ended questionsAgeThematic analysisPERSONS LIVINGEarly stagesYearsRecipientsFormer dementia caregivers’ high and low point narratives: what is remembered, and how is it shared?
Matta-Singh T, Sharma S, Ali T, Piechota A, Abboud A, Fried T, Monin J, Mroz E. Former dementia caregivers’ high and low point narratives: what is remembered, and how is it shared? Aging & Mental Health 2023, 28: 427-435. PMID: 37712688, PMCID: PMC10922763, DOI: 10.1080/13607863.2023.2256252.Peer-Reviewed Original ResearchPersons living with dementia and multiple chronic conditions identifying health priorities with care partners
Vu T, Mroz E, Hernandez‐Bigos K, Chow D, Ternent R, Johnson K, Tinetti M, Monin J. Persons living with dementia and multiple chronic conditions identifying health priorities with care partners. Journal Of The American Geriatrics Society 2023, 71: 2005-2008. PMID: 36705432, PMCID: PMC10836201, DOI: 10.1111/jgs.18257.Peer-Reviewed Original Research
2022
EMOTION REGULATION AND POSITIVE AFFECT IN SPOUSAL DEMENTIA CARE DYADS
Piechota A, Novak J, Vu T, Monin J. EMOTION REGULATION AND POSITIVE AFFECT IN SPOUSAL DEMENTIA CARE DYADS. Innovation In Aging 2022, 6: 400-401. PMCID: PMC9765791, DOI: 10.1093/geroni/igac059.1575.Peer-Reviewed Original ResearchPositive affectEmotion regulationActor-partner interdependence modelLongitudinal actor-partner interdependence modelEmotion Regulation ScaleNegative Affect ScalePartner Interdependence ModelEarly-stage dementiaSelf-reported dataPositive emotionsRegulation ScaleIndividual differencesAffect ScaleInterdependence modelTimes of stressInterdependence theoryEmotionsOlder adultsAffectPositive experiencesAssessment pointsCare dyadsDementia care dyadsGreat difficultyCare partners263 Emergency Department Care Transition Barriers: A Qualitative Study of Care Partners of Older Adults With Cognitive Impairment
Gettel C, Serina P, Uzamere I, Hernandez-Bigos K, Cohen A, Venkatesh A, Monin J, Feder S, Fried T, Hwang U. 263 Emergency Department Care Transition Barriers: A Qualitative Study of Care Partners of Older Adults With Cognitive Impairment. Annals Of Emergency Medicine 2022, 80: s115. DOI: 10.1016/j.annemergmed.2022.08.290.Peer-Reviewed Original Research