The Inclusion Body Myositis Registry at Yale: A growing information database and practical tool for researchers, clinicians, and patients
Cotzomi E, Petschke K, O'Connor K, Paltiel A. The Inclusion Body Myositis Registry at Yale: A growing information database and practical tool for researchers, clinicians, and patients. Muscle & Nerve 2017 DOI: 10.1002/mus.25774.Peer-Reviewed Original ResearchDemographic and clinical features of inclusion body myositis in north America
Paltiel AD, Ingvarsson E, Lee DK, Leff RL, Nowak RJ, Petschke KD, Richards-Shubik S, Zhou A, Shubik M, O'Connor KC. Demographic and clinical features of inclusion body myositis in north America. Muscle & Nerve 2015, 52: 527-533. PMID: 25557419, PMCID: PMC4869122, DOI: 10.1002/mus.24562.Peer-Reviewed Original ResearchConceptsInclusion body myositisBody myositisDaily livingComposite functional indexLarger patient populationWeakness of armsDisease durationClinical featuresInitial diagnosisMean agePatient populationFemale ratioClinical managementClinical trialsOutcome measuresFirst symptomsFunctional indexEarly symptomsNatural historyMean timeSelf-report surveyMyositisPatientsSymptomsDiagnosis