Neurocognitive Impairment Predicts Poor Transition Outcomes Among Patients with Sickle Cell Disease
Saulsberry A, Partanen M, Porter J, Podila P, Hodges J, King A, Wang W, Zhao X, Kang G, Jacola L, Hankins J. Neurocognitive Impairment Predicts Poor Transition Outcomes Among Patients with Sickle Cell Disease. Blood 2019, 134: 519. DOI: 10.1182/blood-2019-121617.Peer-Reviewed Original ResearchSickle cell diseaseEconomic Hardship IndexSt. Jude Children's Research HospitalLast paediatric visitAdult careFurther clinical developmentResearch HospitalCare retentionAmbulatory servicesPediatric visitsCell diseaseClinical developmentExact testFirst adult visitSickle Cell ResearchPatients' cognitive levelAdult-centered careFisher's exact testLong latency periodWilcoxon rank sum testChi-square testNeurocognitive screening batteryGene therapyRank sum testAgios PharmaceuticalsEvaluation of Factors Influencing Health Literacy in Adolescents and Adults with Sickle Cell Disease
Bhatt N, Calhoun C, Hodges J, Nwosu C, Kang G, King A, Zhao X, Hankins J. Evaluation of Factors Influencing Health Literacy in Adolescents and Adults with Sickle Cell Disease. Blood 2019, 134: 2110. DOI: 10.1182/blood-2019-130755.Peer-Reviewed Original ResearchSt. Jude Children's Research HospitalLimited health literacySickle cell diseaseHealth literacy levelsNewest Vital SignAdequate health literacyResearch HospitalFurther clinical developmentHealth literacyNVS scoresCell diseaseSevere genotypeClinical developmentHealth outcomesSt. Louis Children's HospitalLow health literacy levelsYoung adultsDisease-modifying therapiesHealth literacy assessmentHealth literacy scoresLow health literacyCross-sectional studyAppropriate health decisionsCare of adolescentsAdults ages 15