2011
Parents' Roles in Decision Making for Children With Cancer in the First Year of Cancer Treatment
Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Parents' Roles in Decision Making for Children With Cancer in the First Year of Cancer Treatment. Journal Of Clinical Oncology 2011, 29: 2085-2090. PMID: 21464400, DOI: 10.1200/jco.2010.32.0507.Peer-Reviewed Original ResearchMeSH KeywordsAdolescentAdultAttitudeChildChild, PreschoolCommunicationCommunity ParticipationDecision MakingFemaleHumansInfantMaleNeoplasmsParentsPerceptionProfessional-Family RelationsConceptsParents' preferred roleParents of childrenChild's physicianPhysician communicationPreferred roleMost parentsDana-Farber Cancer InstituteCancer treatmentFirst yearCross-sectional surveyChildren's HospitalPhysician judgmentPhysicians' perceptionsCancer InstitutePhysiciansCancerChildrenHospitalTreatmentPassive roleYearsActual roleMore passive rolesParentsRole
2009
Peace of Mind and Sense of Purpose as Core Existential Issues Among Parents of Children With Cancer
Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Peace of Mind and Sense of Purpose as Core Existential Issues Among Parents of Children With Cancer. JAMA Pediatrics 2009, 163: 519-524. PMID: 19487607, DOI: 10.1001/archpediatrics.2009.57.Peer-Reviewed Original ResearchMeSH KeywordsAdaptation, PsychologicalAdolescentBostonChildChild, PreschoolCommunicationCross-Sectional StudiesCultureData CollectionExistentialismHospitals, PediatricHumansInfantMotivationNeoplasmsParentsPersonality InventoryProfessional-Family RelationsPrognosisPsychometricsQuality of LifeSpiritualityTrustConceptsChronic Illness Therapy-Spiritual WellParents of childrenPrognostic informationFunctional assessmentDana-Farber Cancer InstituteMultivariable logistic regression modelCross-sectional surveyDetailed prognostic informationLogistic regression modelsOncologist judgmentChildren's HospitalMAIN OUTCOMECancer InstituteCancerCancer treatmentPeace of mindOncologistsHospitalScoresChildrenFirst yearHigh peaceRegression modelsMedical informationSubscale responses
2007
Understanding of Prognosis Among Parents of Children With Cancer: Parental Optimism and the Parent-Physician Interaction
Mack JW, Cook EF, Wolfe J, Grier HE, Cleary PD, Weeks JC. Understanding of Prognosis Among Parents of Children With Cancer: Parental Optimism and the Parent-Physician Interaction. Journal Of Clinical Oncology 2007, 25: 1357-1362. PMID: 17416854, DOI: 10.1200/jco.2006.08.3170.Peer-Reviewed Original ResearchConceptsChance of cureLikelihood of cureParents of childrenFunctional outcomeDana-Farber Cancer InstituteKnowledge of prognosisUnderstanding of prognosisCross-sectional surveyChildren's HospitalMajority of parentsChild's physicianPhysicians' beliefsCancer InstitutePhysician expectationsPrognosisCancerPhysiciansCancer treatmentCureCancer therapyOutcomesPatientsParents' preferencesPlace parentsUnrealistic expectations
1999
The Consumer Assessment of Health Plan Study (CAHPS) Survey of Children’s Health Care
Homer C, Fowler F, Gallagher P, Shaul J, Uyeda M, Zaslavsky A, Wilson V, Cleary P. The Consumer Assessment of Health Plan Study (CAHPS) Survey of Children’s Health Care. The Joint Commission Journal On Quality And Patient Safety 1999, 25: 369-377. PMID: 10412084, DOI: 10.1016/s1070-3241(16)30452-7.Peer-Reviewed Original ResearchConceptsChild health careOverall carePersonal doctorHealth careHealth Plans Study (CAHPS) surveyConsumer AssessmentHealth care servicesHealth care plansMedical care qualityQuality improvement effortsSpecialty carePediatric careCare plansCare servicesAspects of accessCare qualityInterpersonal careCognitive testingCareImprovement initiativesCore surveyChildrenStrongest correlateNeeds of childrenDoctors