2025
Development and evaluation of a healthcare decision-making intervention for African American parent-adult daughter dementia dyads: a mixed-methods study protocol
Johnson K, Lyons K, Epps F, Daniel G, Monin J, Powell W, Hepburn K. Development and evaluation of a healthcare decision-making intervention for African American parent-adult daughter dementia dyads: a mixed-methods study protocol. BMJ Open 2025, 15: e099976. PMID: 40081986, PMCID: PMC11906994, DOI: 10.1136/bmjopen-2025-099976.Peer-Reviewed Original ResearchConceptsQuality of lifeDementia dyadsPrototype interventionQualitative data collectionQuantitative data collectionOlder adultsMixed-methods study protocolNon-Hispanic White older adultsAfrican American older adultsSelf-efficacyPretest-post-test designWhite older adultsAmerican older adultsDecision-making interventionsHealth-related decisionsSequential mixed-methods designUniversity Institutional Review BoardPrevalence of Alzheimer's diseaseAfrican American personsData collectionExplanatory sequential mixed-methods designMixed-methods designRandomised controlled trialsCare partnersIntervention Mapping
2023
Dyadic Discrete Choice Experiments Enable Persons with Dementia and Informal Caregivers to Participate in Health Care Decision Making: A Mixed Methods Study
Wammes J, Swait J, de Bekker-Grob E, Monin J, Labrie N, Vroomen J. Dyadic Discrete Choice Experiments Enable Persons with Dementia and Informal Caregivers to Participate in Health Care Decision Making: A Mixed Methods Study. Journal Of Alzheimer's Disease 2023, 91: 105-114. PMID: 36373319, PMCID: PMC9881026, DOI: 10.3233/jad-220604.Peer-Reviewed Original ResearchMeSH KeywordsCaregiversChoice BehaviorDecision MakingDelivery of Health CareDementiaHumansPalliative CareConceptsChoice task
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